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Welcome to the Myositis UK Community Forum Sasha!
We are in the process of transferring to a new forum website so please also join there, https://healthunlocked.com/myositisuk
If you are not already a member of Myositis UK here is a link. free membership gives the oportunity for you and a partner to attend the yearly conference on 2nd July in Oxford to hear Myositis experts speak, and meet others with Myositis; also to receive newsletters. http://www.myositis.org.uk/join.asp
I host a Myositis UK Meetup group where we have an informal Afternoon Tea get-together, free to Myositis UK members - there will be one in London later this year http://www.meetup.com/MyositisUK/
If your on facebook you might be interested in a large UK Myositis forum, Myositis Forum UK https://www.facebook.com/groups/243260986023746/
If you have any questions, such as your nearest Myositis specialist clinic is located, I am happy to help.
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